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Parent Carer Forum Jersey calls for parents to share their experience of the Record of Need process

09 April 2024

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Parents are invited to share their experience of the Record of Need (RoN) process to help make improvements, particularly the points of parental involvement.  This will be by attending a parent workshop on Monday 29 April 7-9pm at Pip’s Place.

Parent Carer Forum Jersey calls for parents voices to be heard in Education Inclusion Review

10 June 2021

In light of the Government’s announcement that the National Association for Special Educational Needs (nasen) are conducting an independent evaluation of inclusion in education and early years in the island over the coming weeks, the Parent Carer Forum is urging parents and carers to complete the Government survey to share their views on a number of key issues affecting the inclusion of children and young people with special educational needs and disabilities (SEND) in education.

Parent Case Study: Transition to Adulthood - what does the future hold?

12 May 2021

This week is Mental Health Awareness week and for parents of children with special needs, navigating the system to ensure you are doing the right thing for their future can be mentally draining and stressful for both the parent and the child.  One area where this holds particularly true is the transition to adulthood.  How do you prepare them?  Will they ever be ready?  How can you best support them? It isn’t even clear when they become an adult according to our system.  Is it 16, 18, 21, 25?  This parent story highlights some of the issues they are encountering as their child makes the transition.

Parent Case Study: Education and the deaf child

7 May 2021

The theme of this year’s Deaf Awareness Week is  ‘Coming Through it Together,’ which is explored in this personal story by a parent from their deaf child’s experience through education.  The aim of this week is to raise awareness of the challenges faced by people who are deaf or hard of hearing.  If you have similar experiences we would love to hear from you.

Parent Case Study: Autistic Spectrum Condition – When it all gets too much

1 April 2021

Sensory Overload

As we lead up to Friday, the Forum will be raising awareness. We will be looking at 3 different families, how they are affected and their daily struggles. Each parent’s case study will focus on one of our priority areas. Our case studies aim to help other parents feel that they are not alone and that problems can be halved if shared.

Our second case study focuses on Mental Health and tells the story of an autistic child’s journey from their parent’s viewpoint.

“The shoes are close to falling apart but they are comfy; the world sees a scruffy teenager but we know the reality”

Parent Case Study: An Education in ASC

30 March 2021

Boy and Teacher

As we lead up to World Autism Awareness Day, the Forum will be raising awareness through 3 family case studies. How they are affected and their daily struggles. Each parent’s case study will focus on one of our priority areas. Our case studies aim to help other parents feel that they are not alone and that problems can be halved if shared.

Our first case study focuses on Education and tells the story of a child’s  journey through school having received a diagnosis for Autism Spectrum Condition (or Asperger’s Syndrome), from his mother’s viewpoint.

“The funny thing about having a child with a hidden disability is that it can be a blessing and a curse, depending on the situation”.

As Children’s Mental Health Week gets underway Parent Carer Forum Jersey announces new Chair and 2021 priorities

01 February 2021

 Jonathan Langan

Jonathan Langan has been appointed as the new Chair of Parent Carer Forum Jersey to help drive forward the Forum’s priorities for the coming year.

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Mon April 29th

Enable Jersey are hosting the last opportunity for those living with a disability or long term condition, friends, family and carers to hear about the proposed legislation and give your views in a safe and supported space.Updated Time:

Join us on Tuesday 30th for the final opportunity for those living with a disability or long term condition, friends, family and carers to hear about the proposed legislation and give your views in a safe and supported space.

Please share if you feel able

Government of Jersey Parent Carer Forum Jersey Autism Jersey Jersey Mencap Pain Support Jersey Charity EYECAN Headway JerseyNew Horizons Support Services Les Amis, Jersey Acorn EnterprisesBeresford Street Kitchen Bailiwick Express Jersey Evening Post Channel Eye ITV Channel TV Channel 103 BBC Jersey Parish of St Helier Parish of Trinity Parish of St Saviour Parish of Grouville Parish of St Brélade Parish of St Martin Parish of St Clement Parish of St Lawrence Family Nursing & Home Care Jersey Hospice Care
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Enable Jersey are hosting the last opportunity for those living with a disability or long term condition, friends, family and carers to hear about the proposed legislation and give your views in a safe and supported space.

Thu April 25th

Today was about celebrating an island wide, collective vision for inclusive education and early years, launching the vision's principles and next steps.

A vision where all children and young people experience understanding and the support they need to find their unique fit and to feel like they belong.

We all have a part to play; together we can build an inclusive education system where everyone thrives, feeling well prepared to take their place in the community when they leave.

To read more about the vision and its seven principles bit.ly/4b8juui

#Education4Everyone #inclusion
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Today was about celebrating an island wide, collective vision for inclusive education and early years, launching the visions principles and next steps.  

A vision where all children and young people experience understanding and the support they need to find their unique fit and to feel like they belong. 

We all have a part to play; together we can build an inclusive education system where everyone thrives, feeling well prepared to take their place in the community when they leave.

To read more about the vision and its seven principles https://bit.ly/4b8juui

#Education4Everyone #inclusion

Tue April 23rd

Enable Jersey are trying to ensure that islanders living with disabilities or long term health conditions as well as carers, family and friends have an opportunity to share their views on the Assisted Dying proposals.

Join the Discussion. This is a really important piece of legislation and needs everyone's thoughts.Enable Jersey are working with Government of Jersey to ensure that islanders living with disabilities or long term health conditions as well as carers, family and friends have an opportunity to share their views on the Assisted Dying proposals.

This is such a difficult and very personal subject but we are pleased to be able to support everyone to be able to find out more, understand and contribute to the debate as they would wish to.

The session will take place at St Paul’s Centre on Thursday 25 April, 2-4pm. Please contact Suzanne via her email Suzanne@enablejersey.org or call the office on 485740 for further information or to register your interest if you would like to attend.

A further accessible public consultation will also take place over the coming weeks and the date/time will be shared as soon as possible.

Acorn Enterprises Jersey Mencap Les Amis, Jersey Stroke Association Jersey Parkinson's UK - Jersey Branch MND Association Jersey Headway Jersey Healing Waves - Ocean Therapy Focus on Mental Illness Dementia Jersey Jersey Hospice Care Beresford Street Kitchen Mind Jersey New Horizons Support Services Pain Support Jersey Charity Jersey Recovery CollegeJersey dDeaf Society EYECAN Age Concern Jersey Family Nursing & Home Care Jersey Hospice Care
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Enable Jersey are trying to ensure that islanders living with disabilities or long term health conditions as well as carers, family and friends have an opportunity to share their views on the Assisted Dying proposals.   

Join the Discussion. This is a really important piece of legislation and needs everyones thoughts.

Tue April 23rd

1:30pm on Thursday 25th April - an opportunity to meet with representatives from therapy services including Occupational Therapy, Speech and Language Therapy, Physiotherapy and Nutrition at the Radisson Blu Waterfront Hotel, Jersey.

Find out what each service offers with an explanation on how to access each service, including self-referral.

Book via Eventbrite bit.ly/44a5wpkCalling all parents, carers and anyone working with children and young people!

Don't miss this unique opportunity to meet with representatives from therapy services including Occupational Therapy, Speech and Language Therapy, Physiotherapy and Nutrition on Thursday 25 April at the Radisson Blu Waterfront Hotel, Jersey.

They will show you what their service offers and explain how you can access each service, including self-referral.

Sign up for this free masterclass and learn how to improve outcomes for children and young people through good partnership working with Rikha Wilmot and other Allied Healthcare professionals.

bit.ly/EffectivePartnershipWorking
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1:30pm on Thursday 25th April - an opportunity to meet with representatives from therapy services including Occupational Therapy, Speech and Language Therapy, Physiotherapy and Nutrition at the Radisson Blu Waterfront Hotel, Jersey.

Find out what each service offers with an explanation on how to access each service, including self-referral.

Book via Eventbrite https://bit.ly/44a5wpk

Fri April 19th

This is a great opportunity to chat to the many support services and charities, all under one roof.

What a way to celebrate moving towards a more inclusive education system!

Professionals will also be hosting a variety of free Masterclasses throughout the day - to see what's on offer head to Eventbrite

bit.ly/4aXAwezWe're inviting all parents, education practitioners and anyone who works with children and young people to embrace this unique opportunity to come and talk to various childcare, education and diversity professionals, organisations, and charities.

You can ask all the questions you may have to help you support children and young people in their education and learning.

Joining us from 9am to 6pm are:

ArtHouse Jersey
Autism Jersey
Af Jersey
Best Start Jersey
Beresford Street Kitchen
Brighter Futures Jersey
CAMHS
CEYS
Children's Commissioner Jersey
Centrepoint
Children and Families Hub
Disability Strategy Board/Disability Inclusion Team
EYECAN
Jersey Children's Social Care Service
Fostering And Adoption Jersey
Happy Heroes - Children with additional needs Charity
Highlands College
Jersey Association of Child Carers
Jersey Association of Home Educators
Jersey Child Care Trust
Jersey Employment Trust
Jersey Library
Jersey Music Service
Jersey Youth Service
HCS AHP
Liberate Jersey
Multilingual Advisory Service
Mind Jersey
NSPCC Jersey
Polska Skola na Jersey (Polish School Jersey)
CYPES Education Inclusion Service
Skills Jersey
and representatives from the Parent Carer Forum Jersey

Please email education4everyone@gov.je if you have any queries.
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This is a great opportunity to chat to the many support services and charities, all under one roof.

What a way to celebrate moving towards a more inclusive education system!

Professionals will also be hosting a variety of free Masterclasses throughout the day - to see whats on offer head to Eventbrite 

https://bit.ly/4aXAwez

Comment on Facebook

Brilliant idea x

Wed April 10th

Enable Jersey's next Voice meeting is on 16th April.

The New Healthcare Facilities Programme will be providing a briefing on the early designs of the new Acute Hospital which is set to be at Overdale.Enable Jersey's next Voice meeting is on 16th April, where The New Healthcare Facilities Programme will be providing a briefing on the early designs of the new Acute Hospital which is set to be at Overdale.

The team is keen to engage with members of our group on the early concept design of the hospital and to gain any feedback at this stage.

If you would like to come along please email Suzanne@enablejersey.org
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Enable Jerseys next Voice meeting is on 16th April. 

The New Healthcare Facilities Programme will be providing a briefing on the early designs of the new Acute Hospital which is set to be at Overdale.