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Parent Carer Forum Jersey calls for parents voices to be heard in Education Inclusion Review

10 June 2021

In light of the Government’s announcement that the National Association for Special Educational Needs (nasen) are conducting an independent evaluation of inclusion in education and early years in the island over the coming weeks, the Parent Carer Forum is urging parents and carers to complete the Government survey to share their views on a number of key issues affecting the inclusion of children and young people with special educational needs and disabilities (SEND) in education.

Parent Case Study: Transition to Adulthood - what does the future hold?

12 May 2021

This week is Mental Health Awareness week and for parents of children with special needs, navigating the system to ensure you are doing the right thing for their future can be mentally draining and stressful for both the parent and the child.  One area where this holds particularly true is the transition to adulthood.  How do you prepare them?  Will they ever be ready?  How can you best support them? It isn’t even clear when they become an adult according to our system.  Is it 16, 18, 21, 25?  This parent story highlights some of the issues they are encountering as their child makes the transition.

Parent Case Study: Education and the deaf child

7 May 2021

The theme of this year’s Deaf Awareness Week is  ‘Coming Through it Together,’ which is explored in this personal story by a parent from their deaf child’s experience through education.  The aim of this week is to raise awareness of the challenges faced by people who are deaf or hard of hearing.  If you have similar experiences we would love to hear from you.

Parent Case Study: Autistic Spectrum Condition – When it all gets too much

1 April 2021

Sensory Overload

As we lead up to Friday, the Forum will be raising awareness. We will be looking at 3 different families, how they are affected and their daily struggles. Each parent’s case study will focus on one of our priority areas. Our case studies aim to help other parents feel that they are not alone and that problems can be halved if shared.

Our second case study focuses on Mental Health and tells the story of an autistic child’s journey from their parent’s viewpoint.

“The shoes are close to falling apart but they are comfy; the world sees a scruffy teenager but we know the reality”

Parent Case Study: An Education in ASC

30 March 2021

Boy and Teacher

As we lead up to World Autism Awareness Day, the Forum will be raising awareness through 3 family case studies. How they are affected and their daily struggles. Each parent’s case study will focus on one of our priority areas. Our case studies aim to help other parents feel that they are not alone and that problems can be halved if shared.

Our first case study focuses on Education and tells the story of a child’s  journey through school having received a diagnosis for Autism Spectrum Condition (or Asperger’s Syndrome), from his mother’s viewpoint.

“The funny thing about having a child with a hidden disability is that it can be a blessing and a curse, depending on the situation”.

As Children’s Mental Health Week gets underway Parent Carer Forum Jersey announces new Chair and 2021 priorities

01 February 2021

 Jonathan Langan

Jonathan Langan has been appointed as the new Chair of Parent Carer Forum Jersey to help drive forward the Forum’s priorities for the coming year.

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Tue November 8th

Forum members enjoyed attending the excellent 'Embrace Our Difference' event celebrating disability inclusion and driving positive changes held at the Library last Friday. Liz Johnson, gold medal paralympian swimmer gave an inspirational keynote address. For those unable to attend please see the link to watch: ... See MoreSee Less

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Approx 1hr 14mins for keynote speech but it's all excellent!

Sun October 30th

Timeline photosPop over top over to Eventbrite now to secure tickets for this FREE workshop and support the development of a neurodiverse strategy for Jersey 💙

#autismstrategy #neurodiversity #workingtogether
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Sun October 30th

If you have current experience of Jersey's adult mental health services, the services are seeking your help and input to see how they could be shaped in the future. You can come our last "Equals By Experience" meetings, on Tues 1 Nov at 6:30 pm at St Paul's Centre. ... See MoreSee Less

Sun October 30th

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Fri October 14th

Timeline photos🚴Our Move More Cycling Pop-Up event will return this Saturday (15 October) between 10:00 - 12:00 at Les Quennevais Cycle Track! 👏

The festival will feature a range of different activities from a pedal bike obstacle course, a balance bike track, learn to ride area, the option to leisurely ride around the track, as well as an opportunity to test ride our range of adapted cycles at our Cycle Without Limits centre and more! 🚲

Let us support you to safely and confidently cycle! Register your place today: bit.ly/CycleMore

#MoveMoreJersey #JerseySport #InspiringAnActiveJersey #JerseyCI
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Tue October 11th

Timeline photos"I think the hardest part of having a disabled child is the fight:

The fight for services. The fight for people to understand who your child is and what they need.

The fight for knowledge, because knowledge is power. And the quiet fight you have within yourself, wondering if you've left no stone unturned."

This perfectly sums up what it’s like being a parent carer.

If you’re tired of fighting, the parent carers from our Listening Ear service are here to support you. Book a call with one of them for free at contact.org.uk/listening-ear 🧡
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Tue October 11th

Timeline photosPRINCE'S TRUST GET STARTED

We have a few spaces left on this exciting programme, with the taster day next Thursday - get in touch to join the fun!
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Sat October 8th

Timeline photosA wonderful new online platform for audio described cinema releases, designed for the visually impaired community, My Sound Cinema, has just launched in the UK.

@MySoundCine provides a single location for audio described screenings of new and existing cinema releases. The films will be available on demand 24/7 for pay-per-view access through an established and state-of-the art, fully secure Video On Demand platform. And it is a fully accessible online platform, developed with guidance from visually impaired consultants and AD organisations.

Here is the direct link to their website:
mysoundcinema.com/

[Image shows the EYECAN and My Sound Cinema logos, with the following wording underneath them: The virtual cinema where all films are audio described. Now available in the UK. In the background is a close up photo of popcorn]
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